Tagged: Oxygen Therapy
16/10/2014 at 10:52 pm #7666
My COPD has reached the stage where the need for additional oxygen is coming into consideration.
The alternatives for the supply of oxygen are from cylinders, or from generators / connectors from the atmosphere.
There are advantages for each I believe. I would welcome information from any Greypath member who may have had experience with both, or either, of these supply methods.
Any comments would be greatly appreciated.
Thank you.20/10/2014 at 2:50 pm #7965
Hi Nobe, my name is bill. I live in the US, in Oklahoma. I’ve been using oxygen for a number of years. I have a machine at home I use 24/7. I have a twenty-five foot tubing attached with a seven foot cannula attached. When I go out, I carry one of the small tanks. With a four foot cannula. It was awkward at first but I’ve used one so long now it’s second nature.
I’ve worked my way through all the stages of COPD. I’m somewhere in the last stage. My doctors have told they have done all they can do for me but I keep trying to emulate the little train that could and keep on choging along. Feel free to asked about anything should the occasion arise. I expect others on the forum are using oxygen. Good luck. Cheers.20/10/2014 at 6:16 pm #7992
didi – VICParticipant
nobe73 and bill I know a number of men (in Aus) who use a CPAP but at this point in time they have not had the need to carry oxygen with them.
I trust that you are both able to obtain oxygen in a manner suitable for your needs.
All the best 🙂21/10/2014 at 5:45 am #8016
I’ve never used liquid oxygen at home. I prefer the machine as long as it does the job. They’ve got the little oxiganators you can carry with you but I could never afford one. I get my oxygen through the veterans administration. Cheers.21/10/2014 at 12:16 pm #8071
Bill,thanks for sharing your COPD/Oxygen story with me. I can relate to your analogy of the little train as COPD has been my companion for 20 years and saying ” I know I can ” becomes part of living. I too have resigned myself to the idea that there is little doctors can do so I make the best of a poor situation and carry on regardless. I have not used oxygen up until now as my doctor does not believe it is always helpful. Like you Bill, I’m at the stage where any chance is worth trying.
I have an appointment to see a Respiratory Specialist in a couple of weeks and, if I’ve learned anything in 80 years, it’s to remember the Boy Scout motto ” Be Prepared “. As a result, I am doing some research to determine beforehand what my options may be. By doing so I will be better able to understand and appreciate what findings he makes.
The bottled oxygen you described is one option I’m considering, but as you mentioned it is awkward, especially to begin with. An alternative is the Oxygen Generator/Concentrator which extracts oxygen from the air so you never run out and it is much more compact and user friendly. Have you had any experience with them ? Inogen One is one such machine that is manufactured in the US.
Again thanks for your input. Good luck
21/10/2014 at 12:34 pm #8073
- This reply was modified 3 years, 10 months ago by nobe73.
Thanks for your response didi.
I also use a CPAP machine and am considering a move to use of oxygen for the first time. My doctor has suggested that this may not benefit my condition but it is unlikely to make it worse. Any change would be an improvement.21/10/2014 at 12:55 pm #8079
The veterans administration in the US did a study that indicated the sooner a COPD patient is put on oxygen, the longer he is likely to live. I’ve been on oxygen twelve or thirteen years. I couldn’t get around with out it now. I’m still driving but I can’t walk around in a store or my yard with out it. I’ll be 82 next May, if I make it. Good luck. Hope you hang around here on the forum.21/10/2014 at 9:07 pm #8114
didi – VICParticipant
thankyou for your post/update nobe73 – I trust that you will have a good outcome with your appointment in a couple of weeks 🙂23/10/2014 at 3:47 pm #8231
13 years is a good test for the oxygen therapy. My doctor wasn’t not keen to put me on oxygen for many years. Particularly interesting given what your V A had to say. He says it may not help but in my condition it certainly can’t do any harm.
I will let you know how it works out as son as I get operational with it.
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